A Public Policy Quarterly of The Ramazzini Institute

Volume Two, Number Four                                Fourth Quarter 2001
 


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Mary Davidson
The Insured, the Underinsured, and the Uninsurable:
The Role of Genetics in Health Care Coverage

     The Executive Director of the Genetic Alliance, an international coalition of 350 professional and consumer organizations, spoke at the National Conference of State Legislatures Genetic Policy Forum on October 5-6, 2001 in Washington D.C. For full text,
Read More
In This Issue

Human Ecology
Study Questions Role of Viruses
In New Zealand Mesothelioma Epidemic

    
Malignant mesothelioma, a relatively rare cancer of the lining of the body, in the years 1975 to 1980, had an annual death rate in New Zealand of two per million. Tord Kjellstrom and Pamela Smartt of the University of Auckland have established that the rate for men reached 25 per million for 1995, and that the incidence is expected to double by 2010. What caused the epidemic?
Read More

Fear of a New Form of Eugenics
Who Should Regulate Bioethical
Issues In Genomic Research?

     Bioethics issues for public, but not privately-funded, genomic research are regulated by several agencies in the United States. Does the European Union [EU] have a more comprehensive system? GEE! asked Contributing Editor Marja Sorsa if there is a regulatory agency [as distinct from an investigatory or advisory body] in the EU. For her answer and an insight into the state of regulation in Europe and the US, click on
Read More

Genetic Profiles
Ethnicity Cannot Predict Drug Success
Race should not influence drug prescriptions, warn geneticists. Genetic differences between individuals give a better indication of who will respond well to a medicine, a new study shows. Read More

Amarillo Health Consortium
Board Elected, First Screening Planned

     The Amarillo Health Consortium, a new voluntary occupational health agency formed by a partnership of the Amarillo Metal Trades Council and The Ramazzini Institute, has elected an initial Board and put in place its first program objectives. The new agency will assist both workers at Pantex, the Department of Energy’s nuclear weapons facility in Amarillo, and other workers and their families in the Amarillo metropolitan area, at risk of occupational disease. Read More
 

  

Moral Questions
September 11, 2001: An Attempt To Arrest Civilization

Was the tragedy at the World Trade Center in New York City on September 11 an inevitable, repeat performance of history’s violent drama, reflecting an innate rot in the human core?
    Some clues to the answer are found in the work of Abu Zayd Abd-Ar-Rahman Ibn Khaldun, a late 14th century Islamic scholar, an Arab of North Africa, who is claimed by historians, philosophers, economists, sociologists and anthropologists as one of their own pioneers. He also was a practitioner of Human Ecology, a biologically-modeled approach to understanding the nature of ourselves. Read More

Who Are We?
Buffler Joins Institute Board

 
Patricia A. Buffler, PhD, MPH, Professor of Epidemiology and Dean Emerita of the School of Public Health, University of California at Berkeley, has been elected to the Board of Directors of The Ramazzini Institute. Dr. Buffler takes the position vacated by Professor Arthur Frank, MD, PhD, of the University of Texas Health Center at Tyler. Dr. Frank has been elected Treasurer to replace the late William Nicholson. Dr. Buffler is completing a sabbatical at the World Health Organization’s International Agency for Cancer Research in Lyon, France. Read More


 News In Brief!

 In the face of the Sept. 11 disaster…

  • Conference Re-scheduled! Human Genetics, Environment and Communities of Color: Ethical and Social Implications. An important conference originally scheduled at Columbia University, in New York City, Sept. 20, 2001, is being re-scheduled. Speakers: Primary speaker is Kenneth Olden, Director of the National Institute for Environmental Health Sciences and a leader in the American Environmental Justice movement. Other speakers include Eula Bingham, University of Cincinnati, former Assistant Secretary of Labor for Occupational Safety and Health; and Paul Schulte, Education Director for the National Institute of Occupational Safety and Health and a pioneer on issues of moral responsibility among government epidemiologists. Details? Contact: www.weact.org.
  • In Washington, DC, an estimated 140 to 150 state legislators and legislative staff attended Genetics, Policy and Law: A National Forum, Oct. 5 and 6, conducted by the Genetic Technologies Project of National Conference of State Legislatures, Georgetown University Law Center, and Johns Hopkins School of Hygiene and Public Health. The meeting was sponsored by NIH and the American Council of Life Insurers.
        Speakers included nationally recognized experts such as Professor Mark Rothstein of the newly created center on bioethics and law at the University of Louisville and Mary Davidson, Executive Director of the Genetic Alliance. GEE! publishes in this issue the full text of Davidson’s presentation.
         Cheye Calvo, NCSL specialist, and James Hodge, Jr. Georgetown University Law Center reported the findings of their three-year study of genetics public policy at the state level. Copies of the NIH-funded study can be obtained from the Conference: www.ncsl.org/programs/health/genetics.htm.
  • For the experts: The National Center for Toxicogenomics, NIEHS, is sponsoring Gene Expression and Proteomics in Environmental Health Research, a symposium, December 3-4, 2001, at the NIH campus in Bethesda, MD, on functional genomics, proteomics, toxicology, informatics and database development.
         Toxicogenomics
    , said to be a new science, combines clinical, genomic [including environmental genomic], and proteomic information to increase understanding of biochemical and genetic pathways to disease. Key speakers: Doctors Leroy Hood and Michael Karin.
        
    More information? Call: Dr. James Selkirk or Ms. Sandy Sandberg (919) 541-2548 or 541-3464. http://www.niehs.nih.gov/nct/brochure.htm

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