A Public Policy Quarterly of The Ramazzini Institute

Volume Two, Number One                               January 2001
 


Inside

Who Are We?


Mission
Editorial
Philosophy

Editorial
Board

The Amarillo Health Project
Global Legislation
Selikoff Fund
News & Commentary
Ramazzini
Publications

Moral
Questions

Genetic
Profiles

Archives
Future
Issues

Copyright
Warning


Compensation Bill Signed

Amarillo Congressman Mac Thornberry [right] Chairman of a special nuclear weapons oversight panel , helped break the deadlock on a new compensation and medical assistance law signed into law October 30. Workers at Department of Energy and supplier facilities afflicted with disease from workplace exposure to radiation, asbestos, beryllium and other toxic agents, will receive $150, 000 lump sum payments from a $250 million fund to replace lost lifetime income. Sick workers will also receive future medical expenses.
     A partnership of unions, DOE and bipartisan sponsors in the House and Senate overcame stiff resistance to remedy the failure of state compensation systems to help those who made what President Clinton called “heroic sacrifices” in building the nation’s nuclear arsenal.



Amarillo Congressman
Mac Thornberry

Click Here
DOE Fact Sheet


In This Issue

President Clinton
New Privacy Rules Called "Sweeping!"

  With supporters calling them “sweeping”, President Bill Clinton issued new privacy rules, as he promised to do more than a year ago, in the last thirty days of his administration. The measures are the first comprehensive federal standards on medical data confidentiality. The rules are mandated by a 1996 law that required action by the administration if the Congress did not act.
Read More

Mize Wins One!
  In October, GEE! reported on asbestos in US DOD facilities, quoting a Stars & Stripes story about Don Mize in South Korea. Then we heard directly from Mr. Mize [from his sick bed recovering from heart surgery!]
Read More

Richter, Soskolne, LaDou, and Berman
Environmental Whistleblowers:
The Trial of Socrates Revisited
  Look carefully at almost any case of moral malfeasance in Science, from homicide of research subjects to the falsification of data, and we find that the perpetrator’s action was known, protected if not condoned by the silence of others. While not quite a new idea, as the authors themselves point out, collective protective action must be taken by the scientific community to protect those who speak out, as proposed at a recent meeting in Washington. Read More

Nancye Buelow
Genetic Discrimination:
Update On The Terri Seargent Case
In the prior issue of GEE!, Nancye Buelow wrote about the Terri Seargent case: a young woman who after losing her brother to Alpha-1 Antitrypsin Deficiency was found to also have the disease. Her self-insured employer fired her after receiving the first b ill for preventative treatment, and Mrs. Seargent filed a complaint with the Equal Employment Opportunities Commission.
Read More

Shirley B. Webb
Understanding A Rare Disease:
Late Onset Tay-Sachs
 
The Vice President of the Late Onset Tay-Sachs Foundation writes about discovery: the self-discovery of a misdiagnosed disease, the discovery of others with the same affliction, and their hope for discovering a successful treatment. Read More

Morris Greenberg
Genetic Selection To Replace Adequate Workplace Controls?
 
Dr. Greenberg compares screening for  “susceptibles” or “sensitives” in the workplace, such as for those with the Sickle Cell Trait and G6PD, with classical strategies for worker protection.
Read More

Comments?
 Write or e-mail us:
 The Ramazzini Institute
 P.O. Box 1570
 Solomons, MD 20688
TheEditors@RamazziniUSA.org
Forthcoming!

     On November 7, while millions of Americans trekked to the polls,
another drama took place in the Supreme Court. Arguments were heard
in American Trucking v. Browner, in which EPA is defending its new ozone and particulate initiatives. The new standards address some of the inequities in the protection of vulnerable populations - including the genetic sensitive - under existing standards. [Not unlike the ‘inequities’ issue the court faced weeks later in deciding the Presidential Election.]
     More than 40 prominent economists associated with the prestigious AEI-Brookings regulatory group filed a brief in support of the industry’s basic argument: the agency, they allege, is not doing economic studies. At the same time, the European Union, the US and other industrial nations were preparing for two weeks of negotiations in The Hague on the international agreement to limit weather-altering greenhouse gas emissions. Negotiations broke down over US insistence on regulatory methods that mimic economic trade-offs.
     GEE! takes a look in
April.


Robert A. Sandhaus
On Alpha-1 Antitrypsin Deficiency
  In the United States alone, five million may carry a gene of a life threatening disorder usually evoked by environmental factors.
Read More

First In Series
Evaluation of the Beryllium
Medical Surveillance Program
 
The Ramazzini Institute begins its series on the human ecology of Chronic Beryllium Disease.
Read More

Moral Questions
“The most difficult thing to predict is not the future, but the past.” ---Old Russian Proverb
Read More


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